Warriors and friends:
Our oldest son, Grayson, has been diagnosed with Spino Cerebellar Ataxia (SCA). It is a genetic condition that causes the cerebellum of the brain (the part that controls all motor functions and speech) to progressively die. At this time he walks with a cane but has no feeling below his knees and very little in his hands, in the near future he will be wheelchair bound, then over time lose the ability to use his arms, lose the ability to speak and ultimately to swallow. There is no medical treatment to either slow or cure the progression of the disease. Unless God intervenes, Grayson likely has about 18 months, but perhaps up to 3 years. Death results from suffocation or choking.
We were blessed to have 18 days in the States over the Thanksgiving holiday and we spent every available minute with him. God MIRACULOUSLY granted us long awaited reconciliation with grace and forgiveness given and received on all sides. Now, we are praying for several things.
- That if it be God's will he would heal Grayson COMPLETELY.
- If not heal Grayson, then that God would be glorified even in the unimaginable darkness that he is facing.
- For strength and courage for each of us as we watch God's sovereignty worked out in ways that are beyond our understanding.
- That if God is going to take him, that His mercy would be manifest so that the suffering will not last one moment longer than it must to accomplish God's purposes.
- For tender hearts for each of our children, Grayson, Scarlet and Maverek, that this season they would draw closer to God, rightly perceive His character, and trust him EVEN if/when we don't see the answers we long for.
- For clarity of God's will, as to how long we should stay on the field, or whether God might call us back to Colorado for a season to care for Grayson and walk with him through the "valley of the shadows".
As always, perhaps more so now, we are clinging to the truth that we remain "In His Grip."
Jenni for the family
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